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PIER of Wisconsin
(Parents Information and Education Resource) 
  


Resources

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Main Contacts
for families to go to for
information and resources:



ABCD in Action -             http://abcdinaction.ning.com
        ABCD in Action is your community - a place where we can learn together and from each other about how to apply the principles and 
        practices of Asset-Based Community Development. Please join the discussion!

Access Wisconsin-         www.access.wisconsin.gov/access 
         Welcome to ACCESS - Access to Eligibility Support Services for Health,  Nutrition, Child Care and W-2 Cash Assistance. This   
         website is a quick and easy  way for people who live in Wisconsin to find out if they might be able to  get:       
                   Help with buying food        
                   Low- or no-cost health care        
                   Help with buying prescription drugs        
                   Help with paying for child care        
                   W-2 cash assistance and help finding a job        
                   Home energy assistance        
                   Special tax credits       
                   Low cost life insurance      
 
Autism Spectrum News     http://www.mhnews-autism.org

Birth to Three Program”   Contact your county - Human resources
            In Wood County -   http://www.co.wood.wi.us/Departments/Unified/Child.aspx#BirthToThree

BrainandSpinalCord.org. 
     Our  mission is to be the most reliable, timely and complete resource on the internet for Closed Head Injury and other debilitating
                 diseases.  These  injuries can be devastating, causing physical and emotional distress.   
                 BrainandSpinalCord.org  | 1234 5th Avenue East Tampa, Florida 33605

Bureau of Long Term Support( DHS/DLTC)       http://www.dhs.wisconwsin.gov/publications/P2/p20460.pdf 

Catalyst Center is a national center dedicated to working with states and stakeholder groups on improving health care insurance and
        financing for Children and Youth with Special Health Care Needs (CYSHCN). For more information, please visit us at     
        www.catalystctr.org or contact Meg Comeau, Program Director, at mcomeau@bu.edu.

Children's Long Term Support Waivers for Developmental Delays  http://www.co.wood.wi.us/Departments/Unified/Child.aspx#Waivers
 
Children and Youth with Special Health Care Needs“
     
Finding your way: A Navigation Guide for WI Families Who Have Children 
                    and Youth with Special Health Care Needs and Disabilities
                             www.waisman.wisc.edu/connections
            Regional Center Information
                           http://www.dhs.wisconsin.gov/health/children/RegionalCenters/index.htm

            Wood County Contact - for Northern Regional CYSHCN
                  
North Central Children and Youth with Special Health Care Needs  
                           http://www.co.marathon.wi.us/Departments/HealthDepartment/CYSHCN.aspx
                            Phone 715-261-1900      Toll-Free  1-866-640-4106
                            Ask for: Julia Stavran

Developmental Milestones-- http://www.cdc.gov/ncbddd/actearly/milestones/index.html

Disability Rights Wisconsin - DRW is the  designated protection and advocacy agency for people with developmental, 
         physical, or sensory disabilities and people with mental illness in Wisconsin. DRW engages in a variety of advocacy strategies,
        including one-on-one advocacy  for individuals and their families; systems advocacy (influencing state and  county policy, legislative 
        advocacy and coalition building); class action and impact litigation; and providing training to people with disabilities, their  family 
        members, human service professionals, attorneys and others on a variety of disability related topics.
                        131 W. Wilson St.,  Suite 700
                        Madison, WI 53703
                        608-267-0214
                        TTY: 888-758-6049
                        Fax:  608-267-0368
                        Toll Free: 800-928-8778*

Down Syndrome
http://www.gettindowncentralwi.org

Early Childhood Newslink www.earlychildhoodnews.com
 
Embrace Life Autistically (video/speaker) Judy Endow, MSW at :
               http://autism.com/pro_videoflv.asp?flv=022_atlanta_11_adult_endow&h=480&w=640&VID=207
 
Family Involvement Newsletter http://dpi.wi.gov/e-lists/index.html
 
Family Support Program  http://www.dhs.wisconsin.gov/children/fsp/
       
 Contact your County Human Services
         Wood County Contact     http://www.co.wood.wi.us/Departments/Unified/Child.aspx

Family Voices    http://fvofwi.org
         Family Voices of Wisconsin is a statewide network of families who have children and youth with special health care needs and/or
         disabilities and those who work on their behalf. We support families by providing information, training and leadership opportunities 
         so that families can be informed and effective partners in their child’s care and in the systems that support them.

          Family Voices of Wisconsin is an affiliate of the national Family Voices and we are the home to Wisconsin’s Family to Family
          Health Information and Education Network
. We work closely with the Regional Centers for Children and Youth with Special Health
          Care Needs
around Wisconsin to make sure families find the resources they need.
 
  • LEARN ABOUT THE AFFORDABLE CARE ACT    
  • VIEW OUR FACT SHEETS 
    • Affordable Care Act – A Brief Overview (New April 2013)  English
    • Appealing a Medicaid Denial fact sheet English /Spanish
    • Diapers/Incontinence Supplies and Medicaid: English  | Spanish
    • Family Support Program and Children’s Long Term Support Waivers: English
    • Finding the Right Doctor: English  | Spanish
    • Finding and Funding Respite Care for Your Child with Special Needs:English | Spanish
    • What is HealthCheck Other Services English |Spanish
    • Insurance Changes that Affect Families: English  | Spanish
    • Making the Most of your Doctor’s Appointments English |
    • Medicaid and Transportation to Medical Appointments: English  | Spanish
    • Medicaid and Help with Meals and Lodging | Spanish
    • Mileage Reimbursement for Medicaid Covered Appointments: English | Spanish
    • What Are Outcomes: A Tool For Parents and Caregivers English  | Spanish
    • Personal Care Services and Medicaid: English  | Spanish
  • READ OUR NEWSLETTERS
  • USE THE FREE SPANISH TRANSLATION PROGRAM – Traducela Ahora!

Financial Guide for parents of children with disabilities  http://www.pacer.org/publications/possibitlities

Finding Your Way (Navigation Guide for WI families who have children and youth with
special health care needs and disabilities)
— Download the pdf booklet at  www.waisman.wisc.edu/connections

Maternal and Child Health Library at Georgetown University May 2012
            The  Maternal and Child Health (MCH) Library at Georgetown University has developed a new edition of the   
Community Services Locator, an online directory for finding services for children and families in the
communities in which they live. Service providers and families can use the locator to find available childcare and early childhood
programs; education and special education programs; developmental assessment and learning services; family support; financial
support; and health and wellness care.

            Community Services Locator: An Online Directory for Finding Community Services for Children and Families, 3rd
Edition
      http://www.mchlibrary.info/KnowledgePaths/kp_community.html


MILC - Run– Midstate Independent Living Consultants — Call 800-382-8484 to receive the newsletter via mail or email

National Center for Learning Disabilities — www.oneplaceforspecialneeds.com

National Center on Secondary Education and Transition E-News— http://www.ncset.org/enews/current..asp

Police Liaison program philosophy and goals — www.wirapids.org
and click on government, then Police Dept, then School Officers

 PIER-  http://pierwi.info

 Self Directed Services  Network - SDS  Network - http://sdsnetworkwi.org/ 
 
Transition E-Newsletter — http://www.wsti.org/documents/2010/Transition_enews_1010.pdf

United  Special Sportsman Alliance, Inc. (USSA) -non profit “dream wish” granting charity, that specializes in sending critically-ill and dis­abled youth and disabled veterans on the outdoor adventure of their dreams!- http://www.childswish.com/index.php

Wisconsin  State Resources— http://www.nichcy.org/stateshe/wi.htm 
PIER is an informational site.  It is not a legal services agency and cannot provide legal advice or legal representation.  Any information contained on this site is not intended as legal or medical advice but only as an informational resource.   This web site was created to inform and educate. The content should not be used as a substitute for professional medical advice, recommendations, diagnosis or treatment.

You are encouraged to confirm all information with other sources and a physician. If you have health concerns, please call or see a qualified health care provider without delay. . 

We do not endorse any treatments, providers, or product information in this site.    

As with any program - we strongly encourage you to thoroughly check out references. 

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