June 2020 Newsletter                                  

Are you looking for work?  Are you looking for providers to help with respite, personal care, special needs childcare? 
                   Online state-approved training for people who would like to be providers of support. 
                   Access a registry of trained providers.
                   Could you use fiscal assistance to hire a friend, family member, or neighbor to help you with primary caregiving duties?
                    https://respitecarewi.org/live/      *info@respitecarewi.org​         * phone: 608.222.2033               * fax: 920.993.3335 
      

         Trainings and Workshops
               Local and Statewide
*******************************​*

Powerful Tools Parent Caregiver
Jun 22, 2020 12:30 PM
Jun 29, 2020 12:30 PM
Jul 6, 2020 12:30 PM
Jul 13, 2020 12:30 PM
https://msu.zoom.us/webinar/register/WN_BF850MOwQiOouv_gZF6F7g
-----------------------
​Wisconsin FACETS Webinars
Most webinars 12:00—1:00 PM
             https://wifacets.org/events 
             Sandra: 877-374-0511

​6/23 Special Education and COVID-19  Presenter: Jeff Spitzer-Resnick, Systems Change Consulting

7/30-31  It’s My Life: Taking the Lead! A Virtual Youth Conference

8/11 Special Education & COVID-19 Update - school closures & virtual learning RE: implementation of special ed.  Sign up and pre-submit your questions!

​-------------------------
Family Voices of Wisconsin, Training sessions are FREE and online!
 
Trainings are for family members, self-advocates, educators and professionals.
 
For registration information go to familyvoiceswi.org/learn.
 
What's After High School? This training is an overview of the transition to adult life for young adults with disabilities and/or special health care needs. It’s perfect for families with children ages 14-21 and the providers and school staff who work with them. Of course, youth are welcome! We’ll cover: Planning for the future; Your school’s role; Long-term supports; Vocational resources; Moving to adult health care; Supported decision making and guardianship; and, Self-Determination basics.

Medicaid Made Easy will give you a solid understanding of Medicaid programs for children and how they’re funded. Most importantly, it’s focused on how these programs work for Wisconsin families. We’ll cover: Doorways to Medicaid; Medicaid funded programs; Uses for the ForwardHealth card; and, Next steps with resources.

Did You Know? Now You Know! Learn about all the resources and services for children with disabilities and special health care needs from birth through young adulthood. Topics include private health insurance, Medicaid, long-term supports, how to coordinate services and so much more.
​-----------------------
6/23 – Advanced Skills for Youth- and Young Adult-Driven Practice: Recognizing and Managing the Urge to Lead https://www.pathwaysrtc.pdx.edu/webinars-upcoming11am – 12:30m PT / 2pm – 3:30pm ET
Many of the practice models that providers use in their work with youth and young adults contain the expectation that the young people's perspectives and priorities will drive planning, care and treatment. However, providers are often uncertain about exactly what this kind of youth- or young adult-driven approach looks like in practice. This webinar will use videos drawn from real interactions between young people and providers to demonstrate skills and techniques that providers can use to maintain a youth-/young adult-driven approach, particularly in situations where providers are tempted to “lead” the young person to a new perspective, as when the provider fears that the young person is making a bad or risky choice.
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7/6 Survivors of Suicide Support Group  Ascension Behavioral Health, 209 Prentice Street North in Stevens Point.  Contact Michelle Nelson at Michelle.Nelson@ ascension.org with any questions.
​---------------------
7/15  Advocacy in Wisconsin ~DSAW Webinar Series:
Do you want to get involved in advocating for people with Down syndrome and other special needs in Wisconsin and the national stage, but you don't know where to start? Join us for a presentation from Nicole Patton, Manager of Grassroots Advocacy at the National Down Syndrome Society, to help you learn how to get started!
12pm
https://www.dsaw.org/events/advocacywebinar2020
-----------------------
7/16 Addressing Suicide Prevention in African American Youth: Risk and Protective Factors10am – 11am PT / 1pm – 2pm ET
There has been a significant jump in the rate of suicide among African American youth. These latest findings reinforce the need for more extensive research into the contributing factors along with greater investment in suicide prevention and intervention strategies that are tailored to the needs of Black children and teens.
https://umaryland.webex.com/mw3300/mywebex/default.do?nomenu=true&siteurl=umaryland&service=6&rnd=0.3398738378771884&main_url=https%3A%2F%2Fumaryland.webex.com%2Fec3300%2Feventcenter%2Fevent%2FeventAction.do%3FtheAction%3Ddetail%26%26%26EMK%3D4832534b00000004b37d1fa7f4f6e3f86ac1db008607a9f207445cc2d0932a149e61e1fd3d30e303%26siteurl%3Dumaryland%26confViewID%3D159340746702331994%26encryptTicket%3DSDJTSwAAAASW4AzjlzCGjoKk_dLxkJ-L2V2OV4tjI9TiE8X1Xk5xfQ2%26

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7/19-24  Youth Leadership Forum 2020: Application Available! Do you know a high school student who is a leader or a budding advocate? Youth Leadership Forum is the perfect place to gain or refine leadership skills! 
 
What will participants get out of the training?

• Leadership Skills
• Friends
• Tips for self-advocacy
• Practice for getting/keeping a job
• FUN!!

Edgewood College, Madison, WI
FREE*
Application: https://wi-bpdd.org/wp-content/uploads/2019/11/2020-YLFApplication-Printable.docx 
 
Applications are due April 1st, 2
Jenny  Jennifer.neugart@wisconsin.gov or call 608-266-7707. 
-------------------------------
8/7 Endless Possibilities Conference: A Closer Look at Invisible Disabilities Topics to include: Supporting Neurodiversity, Compassion Resilience, Mental Health, Section 504, Autism and more.  
Whitewater https://wifacets.org/training/endless-possibilities
-------------------------------
8/13&14  Wisconsin Peer Recovery Conference  Virtual event: 
Registration fee is $50.
Scholarships are available.

Workshops on how to provide effective peer support within community services for mental health and substance use concerns and innovative applications of peer support. 
https://www.uwsp.edu/conted/Pages/Wisconsin-Peer-Recovery-Conference.aspx
------------------------------
9/8  Prevent Suicide Wisconsin Conference ,  Reframing the Narrative  Kalahari Resort, Wisconsin Dells https://www.preventsuicidewi.org/psw-annual-conference-registration
------------------------------
9/29th & 30th Growing Stronger Together -Nami  Wisconsin Conference   Osthoff Resort          Breakouts:

• Ask the Expert: Alcohol Use Disorder: Updates on Treatment, Public Health and Stigma
• From Police Crisis to Recovery: Navigating Wisconsin’s Mental Health Labyrinth
• Understanding the Complexities of Eating Disorders and the Importance of a Multidisciplinary Team
• Rethinking Coercion: Legal and Scientific Perspectives on Alternatives to Involuntary Commitment
• Supporting and Enhancing the Role of Family in Mental Illness Recovery: what providers, consumers, and family members need to know

Scholarships are Available! Family members and peers who otherwise would be unable to attend the conference.
 https://secure.qgiv.com/for/namiwisconsin/event/806788/
nami@namiwisconsin.org   https://namiwisconsin.org/nami-wisconsin-events/annual-conference/
----------------------------
​10/28  CoP ASD/DD virtual gathering
Get ready to learn, share, and join together to make a difference.
https://cyshcn.waisman.wisc.edu/

             Activities
​^^^^^^^^^^^^^^^^^^^^
Foster or Adoption networking
​                 & support
Down Syndrome Opportunities  
Grandparent~ Relative caregivers

^^^^^^^^^^^^^^^^^^^^
5/15 to 7/2 VIRTUAL THEATER          CAMP THE SHOW MUST            GO ONLINE!  For ages 8-16
6/15-19 Point Podcast Production 
       Camp 9th grad to Adult 
6/24-29 Girl Power – Girls 
        entering grades 6-8th.
7/27-31 World of Languages
         UW Stevens Point
See all camps: https://www.uwsp.edu/conted/pages/camps.aspx

Need Help? Contact us!
Registration: 715-346-3838
General Questions: uwspce-wausau@uwsp.edu
Scholarships: creynebe@uwsp.edu


New resource for camps - https://www.acacamps.org/resource-library/coronavirus-information-camps
^^^^^^^^^^^^^^^^^^^^

 
                      Vote!  
​8/11  Primary voting
11/3  General election vote

If you want to vote absentee, make sure your registration is up to date, and request an absentee ballot as soon as possible.

• The easiest way to start, check or update your voter registration status, register to vote, and request an absentee ballot is to visit: myvote.wi.gov/.
• For detailed information about voting absentee for the April 7th election, check out our directions on the Disability Vote Coalition website.
• If you miss the deadline, you can still register in your municipal clerk’s office or at your polling place.

 
In- Person Absentee or  (Early) Voting at your Municipal Clerk’s Office’s also an option
 
 ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^
From Children's Museum
Follow on FB! https://www.facebook.com/Central-Wisconsin-Childrens-Museum-CWCM-17911389555
​=============================
             Catholic Charities Adoption Opportunities for foster and adoptive families!
        ***Registration required |833.WIS.APSP | info@wisapsp.org |    
​                 https://wisapsp.org

Check out their online webinars. the latest is: 
The Power of Play, we will discuss the social, emotional and physical impacts of play, as well as opportunities to strengthen parent-child attachment through playfulness. You'll walk away with several resources and ideas for engaging ways to play with your children, and with a new appreciation of its importance. Presenter, Pattie Godsell is a Support Specialist with Wisconsin Adoption & Permanency Support. The webinar is FREE and available to be viewed at your convenience. Just click on the image or visit www.wisapsp.org/videos.
Those who need a certificate of attendance for the course will find a link under the description of the course on our website with post-test questions for you to submit in order to receive your certificate.

Other topics include: 
       Beyond Picky Eating
       Here Be Dragons: Helping children
                   with traumatic backgrounds
​

Questions? Contact ~
Eau Claire - Anne Rozeboom - anne@wisapsp.org - 608-519-8065
Green Bay - Heather Hansen - heather@wisapsp.org - 920-272-8240
La Crosse - Susan McParker - susan@wisapsp.org - 608-519-8023
Madison - Jessica Wright - jessica@wisapsp.org - 608-692-2910 
Milwaukee - Pattie Godsell - pattie@wisapsp.org - 414-369-7489
Wausau - Chelsey Zommers - chelsey@wisapsp.org - 608-519-8068
 
You may also continue to reach us via phone or text with our 24/7 warm-line at 1-833-WIS-APSP.


++++++++++++++++++++++++++++
     Down Syndrome

DSAW Connects: Virtually
See, link, register to more opportunities!
https://www.dsaw.org/statewide-events/
All classes take place over Zoom. Zoom will work on computers, tablets, and phones.

Please note: For paid classes, we will be accepting IRIS or DSAW's "Pay-What-You-Can" options as payment for our courses.

Move & Groove
Monday/ Wednesday/ Friday
            9:00-10:00 AM
OR
Monday/ Wednesday/ Friday
            3:00-4:00 PM
Get your sweat on while having fun! We will learn new moves and dance to your favorite music

Body Blast
Tuesday/ Thursday 9:00-10:00 AM OR
Tuesday/ Thursday 3:00-4:00 PM
A modified and inclusive fitness class for all abilities! Fun workout music and socialization with friends will enhance your experience and keep fitness fun!

Let's Get Connected 
Monday - Friday 10:00-11:00 AM
                       OR 4:00-5:00 PM
Learn how to make new friendships while strengthening current relationships!

Connect Around the World        Monday - Friday 12:00-1:00 PM
Take a trip around the world right from your own computer! Experience new cultures, foods, and languages from different countries across the world.

Boost your Brain                       Tuesday/ Thursday 1:00-2:00 PM
School may be out, but learning is always in! From mindful meditation to crossing the midline, learn a variety of activities that will teach you brand new ways to boost your brain! 

Media Madness                         Monday/ Wednesday/ Friday
         2:00 - 3:00 PM
Explore challenges and benefits associated with technology and our expanding social network all while enjoying popular media.
 
Young Leaders Academy
              (18+ session ONLY)
Young Leaders Academy Westside: Second and Fourth Thursday from 6pm-7pm
Young Leaders Academy East Side and Beyond: First and Third Thursday from 6pm-7pm
We're taking our Young Leaders Academy online! This will be a continuation of the in-person classes we were offering at DSAW's office (west side) and on the east side, but we are welcoming new registrants as well!

​Statewide calendar of events! 
Register or for more info go to: https://www.dsaw.org/statewide-events  

7/15  Advocacy in Wisconsin ~DSAW Webinar Series:
Do you want to get involved in advocating for people with Down syndrome and other special needs in Wisconsin and the national stage, but you don't know where to start?       Join us for a presentation from Nicole Patton, Manager of Grassroots Advocacy at the National Down Syndrome Society, to help you learn how to get started!
12pm
https://www.dsaw.org/events/advocacywebinar2020

Downs Syndrome Awareness Walks Around the State
MADSS  (9/20) 
Central WI  (9/26)
Green Bay  (9/26)
Chippewa Valley  (9/27)
 24th Annual Statewide  (9/27)
La Crosse  (10/3)
Fox Cities  (10/3)
Sheboygan (10/24)

 ===========================
      Grandparent~
  Relative caregivers
Also see: Grandparenting Tab 
​Grandparents & Other Relatives as Parents (GORP) – outreach: quarterly newsletter, warmline (not crisis line but more about finding resources) and community presentations on topics that resonate with relative caregivers.

For more information, contact Serena at referrals@therainbowproject.net or (608) 255-7356.

============================
      Caregiving 
Caregiving versus parenting:
https://centerforfamilyinvolvementblog.org/2019/11/22/caregiving-and-parenting-are-not-the-same/
Print and share with your school or circle of family and friends!
  Family Caregivers/Providers 
       *Funding for Respite!  
         *Find a Provider
         * Be a Provider
Respite Care Association of Wisconsin    Please go to:  https://respitecarewi.org/live/our-programs/   for their most current forms and application process. 
   
Respite Care of Wisconsin also has 
resource for:
           Caregivers of Elderly
           Caregivers of Adults
           Caregivers of Children 
                        and 
           Respite Care Worker
           https://respitecarewi.org/
​============================
Please support PIER by:
     *  Shopping Amazon Smiles  https://smile.amazon.com/ch/39-2004868
          
     * Purchasing Kwik Trip Gas cards  
                       Contact  Pam
               ironkids@hotmail.com

       * Purchasing a bag of Coffee from
                       Blu Play
          
        * Sending donation to: 
                PIER, c/o Pam Ironside,
               6211 North Park Road,
               Wisconsin Rapids, WI 54494

        * Join our PIER board

        *Help update and edit website          

​Disclaimer: These activities and information in this document are not sponsored nor endorsed by the agency, organization or school district sharing forward this information. Neither do they assume responsibility for the conduct during or safety of the activities. The above (or forwarding party) shall be held harmless from any cause of action, claim, or petition filed in any court of administrative tribunal arising out of the distribution of these materials including attorney’s fees and judgments or awards. ​      ​

​        Featured  Opportunities
******************************
     See below sections on: 
            Reminders
           Autism group/networking
           Sibling opportunities
           Mental Health
           Resources you need to know
​
​​******************************
     Reminders

Office of Children's Mental Health
https://children.wi.gov/Pages/ResearchData/FactSheets.aspx
FYI sheets on: 

​​​​​Building Social & Emotional Skills

Prioritizing Children's Mental Health; Spanish Version​

Preventing Underage Drinking

Bullying Prevention​​

Healthy Use of Screen Time
​
Child Maltreatment and Out-of-Home Care 

Children’s Demographics and Well-Being

Children’s Medicaid Funded Mental Health Services

Crisis Intervention Services for Children on Medicaid

Mental Health Services in Schools

Opioid and Methamphetamine Use

​Outpatient Mental Health Service Data for Children on Medicaid

Psychotropic Medication Prescribing for Children on Medicaid

Resilience

School Outcomes Services for Children with Delays or Disabilities

Youth Justice

Youth Psychiatric Hospitalizations, Readmissions, and Emergency Detentions

Youth Suicide and Self Harm

​https://children.wi.gov/Pages/ResearchData/FactSheets.aspx
​=========================
Accommodating Patients with Disabilities During COVID-19 Pandemic Today, in response to the first federal complaint challenging discriminatory hospital “no-visitor” policies, the Office for Civil Rights (OCR) at the U.S. Department of Health & Human Services announced a resolution making clear that federal law requires hospitals and the state agencies overseeing them to modify policies to ensure patients with disabilities can safely access the in-person supports needed to benefit from medical care during the COVID-19 pandemic.
https://www.hhs.gov/about/news/2020/06/09/ocr-resolves-complaints-after-state-connecticut-private-hospital-safeguard-rights-persons.html
 
Strict no-visitor policies put in place at hospitals have prevented patients with disabilities from safely receiving support from family members or staff necessary for them to effectively communicate with medical personnel or otherwise receive equal access to medical treatment. No-visitor policies have disproportionately impacted Black people with disabilities, who have higher rates of infection and hospitalization. Accommodations to these policies are required by federal civil rights laws.  
https://www.cdc.gov/mmwr/volumes/69/wr/mm6918e1.htm?s_cid=mm6918e1_w
===========================
​Wisconsin of Public Instruction Website (DPI) Extended School Closure for Students with IEPs due to COVID19Special Education Question and Answer Document
https://dpi.wi.gov/sites/default/files/imce/sspw/pdf/Extended_School_Closure_due_to_COVID_Revised_3-20-2020.pdf
 
U.S. Department of Education Questions and Answers on Providing Services to Children With Disabilities During The Coronavirus Disease 2019 Outbreak
https://www2.ed.gov/policy/speced/guid/idea/memosdcltrs/qa-covid-19-03-12-2020.pdf
 
Supplemental Fact Sheet Addressing the Risk of COVID-19 in Preschool, Elementary and Secondary Schools While Serving Children with Disabilities (March 21, 2020)
https://www2.ed.gov/about/offices/list/ocr/frontpage/faq/rr/policyguidance/Supple%20Fact%20Sheet%203.21.20%20FINAL.pdf?utm_content=&utm_medium=email&utm_name=&utm_source=govdelivery&utm_term=
 
 
Office of Civil Rights (OCR) webinar https://www.youtube.com/watch?utm_content=&utm_medium=email&utm_name=&utm_source=govdelivery&utm_term=&v=DCMLk4cES6A
 Ensuring web accessibility for students with disabilities for schools utilizing online learning during the Coronavirus (COVID-19) outbreak.
 
Fact sheet for education leaders on how to protect students' civil rights as school leaders take steps to keep students safe and secure.
https://www2.ed.gov/about/offices/list/ocr/docs/ocr-coronavirus-fact-sheet.pdf
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Home Alone –Preparing Children For Self Care
These videos are for parents and their children who are getting ready to stay home alone. Parents and children should watch the videos together and use the short activities after each video to discuss your plans to stay safe.  https://fyi.extension.wisc.edu/homealone/
​
Looking for child care?
Watch this video to learn about how Child Care Resource & Referral agencies and local Referral Specialist staff are just a phone call away to support you in your child care search. https://www.youtube.com/watch?v=A0zBScoPt2E&feature=youtu.be

 --------------------------------------------
Autism Opportunities           (ASCW) 

​Events are now networking on line!  

Support Group Meetings -6:30 pm   FREE   autismsocietycw@gmail.com

AUsome Tweeners Social Group
11:00 am – 12:30 pm
Suggested ages 8-17.
autismsocietycw@gmail.com

Adults with Autism Support Group Meeting -  10:00 am – 11:30 am  A peer support group for adults on the autism spectrum.  autismsocietycw@gmail.com


Autism Society of Wisconsin!​               https://www.asw4autism.org/resource-guide/getting-started/

 Autism Societies
Autism Society of South Central Wisconsin    1-608-630-9147
                     
Autism Society of Southeastern Wisconsin   414.988.1260

Autism Society of Greater Wisconsin  920-558-4602
​​ ​

Community of Practice on Autism Spectrum Disorder and other Developmental Disabilities,
The recordings of the March 10th CoP ASD/DD are available on the WI CoP ASD/DD YouTube Channel.
The handouts are now available on the Connections website on the past meetings page:  https://connections.waisman.wisc.edu/past-meetings/
​

------------------------------------------------
     Wisconsin Sibs  
          Activities
        www.wisconsibs.org
                         or call    
                    920-968-1742
 ------------------------------------------------
          Mental Health 

Contact your local CAP services - they have Mental Health Navigators!
https://capservices.org/who-we-are/

Rogers Behavioral Health - trainings            https://rogersbh.org/resources

​ForwardHealth Update 2020-12 (“Temporary Changes to Telehealth Policy and Clarifications for Behavioral Health and Targeted Case Management Providers”) has been approved and posted to the Portal.  Please share with others who have an interest in this topic.   This allows coverage for behavioral health services delivered via telehealth, including over the phone, during this public health emergency.      ​https://www.forwardhealth.wi.gov/kw/pdf/2020-12.pdf      


Crisis Card - Please access the  PDF you can download:
https://children.wi.gov/Pages/Integrate/Youth-Mental-Health-Crisis-Plan-Card.aspx

​Develop a card for your community - school - agency or work place!

 Wisconsin Addiction Recovery 
​ Helpline: https://211wisconsin.communityos.org/addiction-helpline
​
Behavioral Health/Mental Health Online Database: 
www.mch-hotlines.org/wisconsin-first-step


2-1-1 Your local United Way Website!

-----------------------------------------------

   Learn more about       these resources!!!! 
               +++++++++++++++
WI FACETS
​            – www.wifacets.org
Family Engagement Newsletter –
     Education support and resources 
          June: ADD/ADHD

​         Family Voices -
http://www.familyvoicesofwisconsin.com 
FACT sheets on everything you need to understand regarding your child, youth or adult with special needs!   Factsheets also in Spanish!!!!

             Each family has a voice ~
      Together, our voices will be heard

 * Your link to statewide resources https://familyvoiceswi.org/wp-content/uploads/2020/01/Wisconsin-Resource-Orgs-2020-compress-1.pdf

Preparing for emergencies:
 https://mailchi.mp/fvofwi/family-voices-of-wisconsin-spring-newsletter?e=52afc598d7

Fact sheet on Preparing for emergencies:
    https://familyvoiceswi.org/wp-content/uploads/2020/03/Preparing-for-Emergencies-compress.pdf         ​

This newsletter is compiled through a variety of list serves including but not  limited to:

Waismen Center Healthy Ready to Work
Children and Youth with Special Health Care Needs (CYSHCN)
Family Voices of Wisconsin
DPI Connection
Family Assistance Center for Education Training and Support 
             (FACETS)  http://www.wifacets.org
 Public Access to Court  Electronic Records (PACER)
Cooperative Educational Service Agency (CESA)
Wisconsin Statewide Transition Initiative  (WSTI) 
             http://dpi.wi.gov/sped/parent.html
Parents
Board for People with Developmental Disabilities
DAWN - Disability Awareness Wisconsin Network
National Center on Secondary Education and Transition
             http://www.ncset.org/enews/.
Wisconsin Children and Families - WisKids Journal -       
             http://capwiz.com/wccf/mim/signup/.
The Catalyst Center http://hdwg.org/catalyst/.
National Center on Secondary Education and Transition  
                http://www.ncset.org/enews/.

WSPEI and WI FACETS to share statewide information
regarding parent leadership and family involvement.

Parent Leadership Hub:http://wispdg.org/pl/e-news.html
 Just in Time Information (JITI):
                                          http://wispdg.org/pl/res_jit.html
Resources: http://www.wispdg.org/pl/resources.html*
Calendar of Events:  http://wispdg.org/int/pl-cal.html
Multi-Media Workshops, Video and Webcasts: 
                                    http://wispdg.org/pl-multi.html
Product Order Form:  http://wispdg.org/pl/Revised_Parent_Leadership_Hub_Order_Form-9-08.pdf
 The Parent Leadership Hub supports parents/family members, educators and other  community partners to build capacity regarding meaningful family involvement.   The Hub serves three primary purposes:
(1)  To support parents of children with disabilities between birth and 26 years of  age to participate as partners in the professional development activities of each of the other Statewide Initiatives as they design, deliver and support
professional development experiences
(2) To facilitate opportunities for parents/family members to build leadership skills
(3) To provide Content  Focused technical assistance concerning family  involvement
---------------------------------------

PIER is an informational site.  It is not a legal services agency and cannot provide legal advice or legal representation.  Any information contained on this site is not intended as legal or medical advice but only as an informational resource.   This web site was created to inform and educate. The content should not be used as a substitute for professional medical advice, recommendations, diagnosis or treatment.

You are encouraged to confirm all information with other sources and a physician. If you have health concerns, please call or see a qualified health care provider without delay. . 

We do not endorse any treatments, providers, or product information in this site.    

As with any program - we strongly encourage you to thoroughly check out references.