Resources
Main Contacts
for families to go to for
information and resources:
ABCD in Action - http://abcdinaction.ning.com
ABCD in Action is your community - a place where we can learn together and from each other about how to apply the principles and
practices of Asset-Based Community Development. Please join the discussion!
ABC for Health Care 1-800-585-4222
32 N BASSETT ST MADISON, WI 53703
· 608-261-6939 800-585-4222
· INFO@SAFETYWEB.ORG
Access Wisconsin- www.access.wisconsin.gov/access
Welcome to ACCESS - Access to Eligibility Support Services for Health, Nutrition, Child Care and W-2 Cash Assistance. This
website is a quick and easy way for people who live in Wisconsin to find out if they might be able to get:
Help with buying food
Low- or no-cost health care
Help with buying prescription drugs
Help with paying for child care
W-2 cash assistance and help finding a job
Home energy assistance
Special tax credits
Low cost life insurance
Advocacy ATLAS: A new online resource for individuals with special healthcare
needs and their families. The Accessible Tools for Leadership and Advocacy Success, features over 250 tools
and resources to help new and experienced advocates communicate their needs around services, support, and access.
www.geneticalliance.org - Resources and Services Tab - Thanks Robin!
Autism Spectrum News http://www.mhnews-autism.org
Birth to Three Program” Contact your county - Human resources
In Wood County - http://www.co.wood.wi.us/Departments/Unified/Child.aspx#BirthToThree
BrainandSpinalCord.org.
Our mission is to be the most reliable, timely and complete resource on the internet for Closed Head Injury and other debilitating
diseases. These injuries can be devastating, causing physical and emotional distress.
BrainandSpinalCord.org | 1234 5th Avenue East Tampa, Florida 33605
Bureau of Indian Affairs - Ashland office - 715-682-4527
Bureau of Long Term Support( DHS/DLTC) http://www.dhs.wisconwsin.gov/publications/P2/p20460.pdf
Catalyst Center is a national center dedicated to working with states and stakeholder groups on improving health care insurance and
financing for Children and Youth with Special Health Care Needs (CYSHCN). For more information, please visit us at
www.catalystctr.org or contact Meg Comeau, Program Director, at mcomeau@bu.edu.
Catholic Charities - Is a post adoption resource center. Our mission is to offer education, support services and resources to adoptive families (many of whom have adopted kids with special needs). www.parc.cclse
540 S. Third Ave.
P.O. Box 2186
Wausau, WI. 54402-2186
Phone: 715.849.3311 x1725
Fax: 715.849.8414
Center for Parent Information and Resources (CPIR). http://www.parentcenterhub.org/
Cerebral Palsy Guide. A free online guide that provides information, support and financial help to families affected by this condition. It is our mission to raise awareness about cerebral palsy and the various treatment methods and support groups available for parents and children. https://www.cerebralpalsyguide.com/
CerebralPalsyGuidance.com is a comprehensive informational website on cerebral palsy. As someone who’s lived with cerebral palsy since infancy, I know how critical it is for parents of a child with CP to have access to reliable and comprehensive information on this complex condition. www.cerebralpalsyguidance.com
Children's Long Term Support Waivers for Developmental Delays http://www.co.wood.wi.us/Departments/Unified/Child.aspx#Waivers
Children and Youth with Special Health Care Needs“
Finding your way: A Navigation Guide for WI Families Who Have Children
and Youth with Special Health Care Needs and Disabilities
www.waisman.wisc.edu/connections
Regional Center Information
http://www.dhs.wisconsin.gov/health/children/RegionalCenters/index.htm
Wood County Contact - for Northern Regional CYSHCN
North Central Children and Youth with Special Health Care Needs
www.northernregionalcenter.org
Phone 715-261-1900 Toll-Free 1-866-640-4106
Ask for: Julia Stavran
Department of Health Services for Family Support http://www.dhs.wisconsin.gov/children/fsp/index.htm
Children's Long Term Care Waivers- http://www.dhs.wisconsin.gov/children/clts/index.htm
Developmental Milestones-- http://www.cdc.gov/ncbddd/actearly/milestones/index.html
Let me know what you think about this new site on tracking development
http://wwmc.2013.nodeknockout.com/#/skills
Disability Rights Wisconsin - DRW is the designated protection and advocacy agency for people with developmental,
physical, or sensory disabilities and people with mental illness in Wisconsin. DRW engages in a variety of advocacy strategies,
including one-on-one advocacy for individuals and their families; systems advocacy (influencing state and county policy, legislative
advocacy and coalition building); class action and impact litigation; and providing training to people with disabilities, their family
members, human service professionals, attorneys and others on a variety of disability related topics.
131 W. Wilson St., Suite 700
Madison, WI 53703
608-267-0214
TTY: 888-758-6049
Fax: 608-267-0368
Toll Free: 800-928-8778*
Down Syndrome http://www.gettindowncentralwi.org
Early Childhood Newslink www.earlychildhoodnews.com
Embrace Life Autistically (video/speaker) Judy Endow, MSW at :
http://autism.com/pro_videoflv.asp?flv=022_atlanta_11_adult_endow&h=480&w=640&VID=207
Family Involvement Newsletter http://dpi.wi.gov/e-lists/index.html
Family Support Program http://www.dhs.wisconsin.gov/children/fsp/
Contact your County Human Services
Wood County Contact http://www.co.wood.wi.us/Departments/Unified/Child.aspx
Family Voices http://fvofwi.org
Family Voices of Wisconsin is a statewide network of families who have children and youth with special health care needs and/or
disabilities and those who work on their behalf. We support families by providing information, training and leadership opportunities
so that families can be informed and effective partners in their child’s care and in the systems that support them.
Family Voices of Wisconsin is an affiliate of the national Family Voices and we are the home to Wisconsin’s Family to Family
Health Information and Education Network. We work closely with the Regional Centers for Children and Youth with Special Health
Care Needs around Wisconsin to make sure families find the resources they need.
Katie Beckett Consultant for Wood County - Wisconsin's Katie Beckett Medicaid Program provides health care coverage to eligible
children who have disabilities and long-term support needs. Tim Waller 608.397.8850 4-29-14
Tim Waller, BSW - Katie Beckett Consultant for: Buffalo, Crawford, Eau Claire, Jackson, Juneau, La Crosse, Monroe, Pepin,
Richland, Sauk, Trempealeau, Vernon and Wood CompassWI:Threshold for: Adams and Marquette The Parenting Place
1035 Riders Club Road
Onalaska, WI 54650
Phone: 608.397.8850 / Fax: 608.781.4517
E-mail: tim.waller@wisconsin.gov
Finding Your Way (Navigation Guide for WI families who have children and youth with
special health care needs and disabilities)-- Download the pdf booklet at www.waisman.wisc.edu/connections
Maternal and Child Health Library at Georgetown University May 2012
The Maternal and Child Health (MCH) Library at Georgetown University has developed a new edition of the
Community Services Locator, an online directory for finding services for children and families in the
communities in which they live. Service providers and families can use the locator to find available childcare and early childhood
programs; education and special education programs; developmental assessment and learning services; family support; financial
support; and health and wellness care.
Community Services Locator: An Online Directory for Finding Community Services for Children and Families, 3rd
Edition http://www.mchlibrary.info/KnowledgePaths/kp_community.html
MILC - Midstate Independent Living Consultants, Inc. http://www.milc-inc.org/home.html
3262 Church St. Suite 1
Stevens Point, WI 54481
Phone: Toll free: 1-800-382-8484
V/TTY: 715-344-4210 Fax: 715-344-4414 Email: milc@milc-inc.org
National Center for Learning Disabilities — www.oneplaceforspecialneeds.com
National Center on Secondary Education and Transition E-News— http://www.ncset.org/enews/current..asp
Parent to Parent of Wisconsin – Is a statewide network of families who support each other on the journey of parenting children with
special health care needs. It offers parents and caregivers the opportunity to connect one-to-one with a
parent of a child with similar special needs. A parent coordinator facilitates the match with a trained support parent. For
information and connections, call 888-266-0028 or see www.p2pwi.org .
Parent Resource Center of Taylor County-133 W. State Street -Medford, 715-748-5363- parentrc@tds.net
PIER- http://pierwi.info
Police Liaison program philosophy and goals — www.wirapids.org
and click on government, then Police Dept, then School Officers
Self Directed Services Network - SDS Network - http://sdsnetworkwi.org/
Transition E-Newsletter — http://www.wsti.org/documents/2010/Transition_enews_1010.pdf
United Special Sportsman Alliance, Inc. (USSA) -non profit “dream wish” granting charity, that specializes in sending critically-ill and
disabled youth and disabled veterans on the outdoor adventure of their dreams!- http://www.childswish.com/index.php
Visual impairment or blindness http://www.lighthouseguild.org/programs-services/education/support-for-parents-of-children-with-visual-impairments/tele-support-groups-teens/
Wisconsin FACETS - Family Assistant Center for Education and Training Supports
http://www.wifacets.org 877.374.0511
Wisconsin First Step - Help for Families of children with Special Healthcare Needs - 1-800-642-7837
Did you ever wonder how to help a family get connected to resources and information that could help them with their child’s special
needs or attempts to diagnose a special need? Contact Wisconsin First Step 24/7 Hotline to get agency and provider information
to help families get connected!
Getting a new diagnosis or determining what special needs a child has can be very overwhelming. Wisconsin First Step attempts to
aid parents and professionals through this journey. A phone call to our hotline will provide information about local services, as well
as, referrals to providers when appropriate.
A Wisconsin First Step Parent Specialist offers an empathetic ear to callers as a professional who is also the parent of a child with
special needs. A Parent Specialist is able to offer a qualified connection, because they may have been through many of the caller
situations at one time or another with their own child.
FIND US ON FACEBOOK to receive special needs resources and parenting info
Chat with a Parent Specialist (M-F 8am – 4pm)
Website www.mch-hotlines.org |
ABCD in Action is your community - a place where we can learn together and from each other about how to apply the principles and
practices of Asset-Based Community Development. Please join the discussion!
ABC for Health Care 1-800-585-4222
32 N BASSETT ST MADISON, WI 53703
· 608-261-6939 800-585-4222
· INFO@SAFETYWEB.ORG
Access Wisconsin- www.access.wisconsin.gov/access
Welcome to ACCESS - Access to Eligibility Support Services for Health, Nutrition, Child Care and W-2 Cash Assistance. This
website is a quick and easy way for people who live in Wisconsin to find out if they might be able to get:
Help with buying food
Low- or no-cost health care
Help with buying prescription drugs
Help with paying for child care
W-2 cash assistance and help finding a job
Home energy assistance
Special tax credits
Low cost life insurance
Advocacy ATLAS: A new online resource for individuals with special healthcare
needs and their families. The Accessible Tools for Leadership and Advocacy Success, features over 250 tools
and resources to help new and experienced advocates communicate their needs around services, support, and access.
www.geneticalliance.org - Resources and Services Tab - Thanks Robin!
Autism Spectrum News http://www.mhnews-autism.org
Birth to Three Program” Contact your county - Human resources
In Wood County - http://www.co.wood.wi.us/Departments/Unified/Child.aspx#BirthToThree
BrainandSpinalCord.org.
Our mission is to be the most reliable, timely and complete resource on the internet for Closed Head Injury and other debilitating
diseases. These injuries can be devastating, causing physical and emotional distress.
BrainandSpinalCord.org | 1234 5th Avenue East Tampa, Florida 33605
Bureau of Indian Affairs - Ashland office - 715-682-4527
Bureau of Long Term Support( DHS/DLTC) http://www.dhs.wisconwsin.gov/publications/P2/p20460.pdf
Catalyst Center is a national center dedicated to working with states and stakeholder groups on improving health care insurance and
financing for Children and Youth with Special Health Care Needs (CYSHCN). For more information, please visit us at
www.catalystctr.org or contact Meg Comeau, Program Director, at mcomeau@bu.edu.
Catholic Charities - Is a post adoption resource center. Our mission is to offer education, support services and resources to adoptive families (many of whom have adopted kids with special needs). www.parc.cclse
540 S. Third Ave.
P.O. Box 2186
Wausau, WI. 54402-2186
Phone: 715.849.3311 x1725
Fax: 715.849.8414
Center for Parent Information and Resources (CPIR). http://www.parentcenterhub.org/
Cerebral Palsy Guide. A free online guide that provides information, support and financial help to families affected by this condition. It is our mission to raise awareness about cerebral palsy and the various treatment methods and support groups available for parents and children. https://www.cerebralpalsyguide.com/
CerebralPalsyGuidance.com is a comprehensive informational website on cerebral palsy. As someone who’s lived with cerebral palsy since infancy, I know how critical it is for parents of a child with CP to have access to reliable and comprehensive information on this complex condition. www.cerebralpalsyguidance.com
Children's Long Term Support Waivers for Developmental Delays http://www.co.wood.wi.us/Departments/Unified/Child.aspx#Waivers
Children and Youth with Special Health Care Needs“
Finding your way: A Navigation Guide for WI Families Who Have Children
and Youth with Special Health Care Needs and Disabilities
www.waisman.wisc.edu/connections
Regional Center Information
http://www.dhs.wisconsin.gov/health/children/RegionalCenters/index.htm
Wood County Contact - for Northern Regional CYSHCN
North Central Children and Youth with Special Health Care Needs
www.northernregionalcenter.org
Phone 715-261-1900 Toll-Free 1-866-640-4106
Ask for: Julia Stavran
Department of Health Services for Family Support http://www.dhs.wisconsin.gov/children/fsp/index.htm
Children's Long Term Care Waivers- http://www.dhs.wisconsin.gov/children/clts/index.htm
Developmental Milestones-- http://www.cdc.gov/ncbddd/actearly/milestones/index.html
Let me know what you think about this new site on tracking development
http://wwmc.2013.nodeknockout.com/#/skills
Disability Rights Wisconsin - DRW is the designated protection and advocacy agency for people with developmental,
physical, or sensory disabilities and people with mental illness in Wisconsin. DRW engages in a variety of advocacy strategies,
including one-on-one advocacy for individuals and their families; systems advocacy (influencing state and county policy, legislative
advocacy and coalition building); class action and impact litigation; and providing training to people with disabilities, their family
members, human service professionals, attorneys and others on a variety of disability related topics.
131 W. Wilson St., Suite 700
Madison, WI 53703
608-267-0214
TTY: 888-758-6049
Fax: 608-267-0368
Toll Free: 800-928-8778*
Down Syndrome http://www.gettindowncentralwi.org
Early Childhood Newslink www.earlychildhoodnews.com
Embrace Life Autistically (video/speaker) Judy Endow, MSW at :
http://autism.com/pro_videoflv.asp?flv=022_atlanta_11_adult_endow&h=480&w=640&VID=207
Family Involvement Newsletter http://dpi.wi.gov/e-lists/index.html
Family Support Program http://www.dhs.wisconsin.gov/children/fsp/
Contact your County Human Services
Wood County Contact http://www.co.wood.wi.us/Departments/Unified/Child.aspx
Family Voices http://fvofwi.org
Family Voices of Wisconsin is a statewide network of families who have children and youth with special health care needs and/or
disabilities and those who work on their behalf. We support families by providing information, training and leadership opportunities
so that families can be informed and effective partners in their child’s care and in the systems that support them.
Family Voices of Wisconsin is an affiliate of the national Family Voices and we are the home to Wisconsin’s Family to Family
Health Information and Education Network. We work closely with the Regional Centers for Children and Youth with Special Health
Care Needs around Wisconsin to make sure families find the resources they need.
Katie Beckett Consultant for Wood County - Wisconsin's Katie Beckett Medicaid Program provides health care coverage to eligible
children who have disabilities and long-term support needs. Tim Waller 608.397.8850 4-29-14
Tim Waller, BSW - Katie Beckett Consultant for: Buffalo, Crawford, Eau Claire, Jackson, Juneau, La Crosse, Monroe, Pepin,
Richland, Sauk, Trempealeau, Vernon and Wood CompassWI:Threshold for: Adams and Marquette The Parenting Place
1035 Riders Club Road
Onalaska, WI 54650
Phone: 608.397.8850 / Fax: 608.781.4517
E-mail: tim.waller@wisconsin.gov
- LEARN ABOUT THE AFFORDABLE CARE ACT
- VIEW OUR FACT SHEETS
- Affordable Care Act – A Brief Overview (New April 2013) English
- Appealing a Medicaid Denial fact sheet English /Spanish
- Diapers/Incontinence Supplies and Medicaid: English | Spanish
- Family Support Program and Children’s Long Term Support Waivers: English
- Finding the Right Doctor: English | Spanish
- Finding and Funding Respite Care for Your Child with Special Needs:English | Spanish
- What is HealthCheck Other Services English |Spanish
- Insurance Changes that Affect Families: English | Spanish
- Making the Most of your Doctor’s Appointments English |
- Medicaid and Transportation to Medical Appointments: English | Spanish
- Medicaid and Help with Meals and Lodging | Spanish
- Mileage Reimbursement for Medicaid Covered Appointments: English | Spanish
- What Are Outcomes: A Tool For Parents and Caregivers English | Spanish
- Personal Care Services and Medicaid: English | Spanish
- READ OUR NEWSLETTERS
- USE THE FREE SPANISH TRANSLATION PROGRAM – Traducela Ahora!
Finding Your Way (Navigation Guide for WI families who have children and youth with
special health care needs and disabilities)-- Download the pdf booklet at www.waisman.wisc.edu/connections
Maternal and Child Health Library at Georgetown University May 2012
The Maternal and Child Health (MCH) Library at Georgetown University has developed a new edition of the
Community Services Locator, an online directory for finding services for children and families in the
communities in which they live. Service providers and families can use the locator to find available childcare and early childhood
programs; education and special education programs; developmental assessment and learning services; family support; financial
support; and health and wellness care.
Community Services Locator: An Online Directory for Finding Community Services for Children and Families, 3rd
Edition http://www.mchlibrary.info/KnowledgePaths/kp_community.html
MILC - Midstate Independent Living Consultants, Inc. http://www.milc-inc.org/home.html
3262 Church St. Suite 1
Stevens Point, WI 54481
Phone: Toll free: 1-800-382-8484
V/TTY: 715-344-4210 Fax: 715-344-4414 Email: milc@milc-inc.org
National Center for Learning Disabilities — www.oneplaceforspecialneeds.com
National Center on Secondary Education and Transition E-News— http://www.ncset.org/enews/current..asp
Parent to Parent of Wisconsin – Is a statewide network of families who support each other on the journey of parenting children with
special health care needs. It offers parents and caregivers the opportunity to connect one-to-one with a
parent of a child with similar special needs. A parent coordinator facilitates the match with a trained support parent. For
information and connections, call 888-266-0028 or see www.p2pwi.org .
Parent Resource Center of Taylor County-133 W. State Street -Medford, 715-748-5363- parentrc@tds.net
PIER- http://pierwi.info
Police Liaison program philosophy and goals — www.wirapids.org
and click on government, then Police Dept, then School Officers
Self Directed Services Network - SDS Network - http://sdsnetworkwi.org/
Transition E-Newsletter — http://www.wsti.org/documents/2010/Transition_enews_1010.pdf
United Special Sportsman Alliance, Inc. (USSA) -non profit “dream wish” granting charity, that specializes in sending critically-ill and
disabled youth and disabled veterans on the outdoor adventure of their dreams!- http://www.childswish.com/index.php
Visual impairment or blindness http://www.lighthouseguild.org/programs-services/education/support-for-parents-of-children-with-visual-impairments/tele-support-groups-teens/
Wisconsin FACETS - Family Assistant Center for Education and Training Supports
http://www.wifacets.org 877.374.0511
Wisconsin First Step - Help for Families of children with Special Healthcare Needs - 1-800-642-7837
Did you ever wonder how to help a family get connected to resources and information that could help them with their child’s special
needs or attempts to diagnose a special need? Contact Wisconsin First Step 24/7 Hotline to get agency and provider information
to help families get connected!
Getting a new diagnosis or determining what special needs a child has can be very overwhelming. Wisconsin First Step attempts to
aid parents and professionals through this journey. A phone call to our hotline will provide information about local services, as well
as, referrals to providers when appropriate.
A Wisconsin First Step Parent Specialist offers an empathetic ear to callers as a professional who is also the parent of a child with
special needs. A Parent Specialist is able to offer a qualified connection, because they may have been through many of the caller
situations at one time or another with their own child.
FIND US ON FACEBOOK to receive special needs resources and parenting info
Chat with a Parent Specialist (M-F 8am – 4pm)
Website www.mch-hotlines.org |
PIER is an informational site. It is not a legal services agency and cannot provide legal advice or legal representation. Any information contained on this site is not intended as legal or medical advice but only as an informational resource. This web site was created to inform and educate. The content should not be used as a substitute for professional medical advice, recommendations, diagnosis or treatment.
You are encouraged to confirm all information with other sources and a physician. If you have health concerns, please call or see a qualified health care provider without delay. .
We do not endorse any treatments, providers, or product information in this site.
As with any program - we strongly encourage you to thoroughly check out references.
You are encouraged to confirm all information with other sources and a physician. If you have health concerns, please call or see a qualified health care provider without delay. .
We do not endorse any treatments, providers, or product information in this site.
As with any program - we strongly encourage you to thoroughly check out references.
